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The National Marfan Foundation is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.
The Foundation, which was founded in 1981, accomplishes these goals by:
1) Educating patients, family members and the health care community about the syndrome.
2) Advocating and funding clinical and molecular research into the syndrome?s detection and treatment.
3) Providing national support services and a network of local and special interest support groups for patients and relatives to share experiences and improve their medical care.
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